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Cezra31 Empty Cezra31

Post by cezra31 on Wed 19 Sep 2012, 07:29

Hello Everyone,

My true name is Ezra M Very Happy

I am a new helper, so I studying all fixes. Sorry for my wrong answers sometimes I help you. :DBut let me Introduce my self.

I am a boy, on March 13, 1998 I was born in the Philippines, and I am 14 Years old now. My religion is The Church of Jesus Christ of Latter-day Saints (Also known as Mormons). I am 3rd Year Highschool (Grade 9). I have Hemophilia (Bleaders Disease/Royal Blood) but I dont feel that I am sick because my parents give me full of love.

Let me explain to you all of my Disease. Haemophilia ( /hiːməˈfɪliə/; also spelled hemophilia in North America) is a group of hereditary genetic disorders that impair the body's ability to control blood clotting or coagulation, which is used to stop bleeding when a blood vessel is broken. Haemophilia A (clotting factor VIII deficiency) is the most common form of the disorder, present in about 1 in 5,000–10,000 male births. Haemophilia B (factor IX deficiency) occurs in around 1 in about 20,000–34,000 male births.
Like most recessive ***-linked, X chromosome disorders, haemophilia is more likely to occur in males than females. This is because females have two X chromosomes while males have only one, so the defective gene is guaranteed to manifest in any male who carries it. Because females have two X chromosomes and haemophilia is rare, the chance of a female having two defective copies of the gene is very remote, so females are almost exclusively asymptomatic carriers of the disorder. Female carriers can inherit the defective gene from either their mother or father, or it may be a new mutation. Although it is not impossible for a female to have haemophilia, it is unusual: a female with haemophilia A or B would have to be the daughter of both a male haemophiliac and a female carrier, while the non-***-linked haemophilia C due to coagulant factor XI deficiency, which can affect either ***, is more common in Jews of Ashkenazi (east European) descent but rare in other population groups.
Haemophilia lowers blood plasma clotting factor levels of the coagulation factors needed for a normal clotting process. Thus when a blood vessel is injured, a temporary scab does form, but the missing coagulation factors prevent fibrin formation, which is necessary to maintain the blood clot. A haemophiliac does not bleed more intensely than a person without it, but can bleed for a much longer time. In severe haemophiliacs even a minor injury can result in blood loss lasting days or weeks, or even never healing completely. In areas such as the brain or inside joints, this can be fatal or permanently debilitating. (Based on http://en.wikipedia.org/wiki/Haemophilia )

I Have Hemophilia A Severe (this is lifetime). So i have only 0.001 or 0.000 Blood Cloting Factor VIII, Because of that i have very limited movements like Playing ball games(if i bump my head it will cause such bleeding in my head) , Biking, Running, Walking and standing (for a long time), Swimming (for a long time), Jumping and etc. My mother go with me everyday in school or wherever i will go(but now i am homestudy because of my feet always swelling). Unfortunatelly this disease is uncurable, but it can be controlled with regular infusions of the deficient clotting factor, i.e. factor VIII in haemophilia A or factor IX in haemophilia B. Factor replacement can be either isolated from human blood serum, recombinant, or a combination of the two.

I like to help people. So i have decided to help in this forum(another reason i have many spare time because i am homestudy Wink)

I am happy to share with you all a part of my life. :DAnd I hope scientist will discover such cure in my disease. Bible said "with God all thing are possible" Very Happy

Sorry for my poor English  lol!

Last edited by cezra31 on Thu 11 Jul 2013, 02:52; edited 2 times in total


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